Wednesday, June 18, 2008

So many developments, so little time to type

Okay- We have hit the ground running, and kicking, and rolling over from our tummies to our backs. It's much cuter when Miles does it; he has real finesse. Let me just share our news in list format.

1. The surgery has been scheduled for July 25th. We are going up a few days earlier to have a pre-op meeting.

2. Just found out today that his surgeon, Dr. Peeler, wants an MRI prior to operation. We are going to C'ville on July 17th to have that done. They said Miles can't eat after midnight prior to procedure, and we take him in at 6:45 am. I am predicting a rough morning. Any suggestions on how to tell Miles we are withholding his food for medical purposes? When this kid gets hungry, all the stops are pulled at our house. He is Audrey II in infant form, "Feed me, Seymour!! Feed me all night long!!" See below.

3. Miles IFSP was written yesterday. His evaluations went amazingly. An IFSP is like an IEP for a family. Leading up to his surgery, Miles will receive OT (occupational therapy) weekly, per his IFSP. The service provider will come to our house in 45 minute time blocks and work with me and Miles. As of now, it looks like he doesn't need speech therapy. Though speech will come into play when Miles starts eating more solid foods- same muscle group. Of all the areas of development measured, he was on par for everything!! Miles rolls, babbles, tracks with his eyes, socially smiles and giggles- we are doing OT to ensure that he continues this phenomenal development. I worry that we will loose time following his post-op recovery, which could last from 6 to 8 weeks. We are working with a local agency called CDR, Child Development Resources. CDR conducted the evaluations and will provide the related services in the IFSP. Though they are not technically affiliated with my school division, they do have a close working relationship. In fact, they will help write a transition plan for Miles when he approaches school age. And in my division, I can have him placed in a program by age 2. Right now, I am super thankful that I know the in's and out's of special education. One can get easily lost in the acronyms alone- IEP, IFSP, FBA, BIP, IDEA, LEA, FAPE. . .it truly never ends. Please check out CDR's website; we couldn't be luckier to have them in our community! http://www.cdr.org/

The program which are working under is found at the following link: http://www.cdr.org/?q=node/30

To learn more about IFSPs and the Infant & Toddler Connection, check out this link: http://www.earlyintervention-va.com/overview.html

Happy reading!

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